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dataMSA Surveys for Multiple System Atrophy

Patient Data Report

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  • 223pages
  • 8 heures de lecture

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(2019 Edition) When I couldn't find patient-driven information about MSA, and when my doctors didn't have a lot of information about patient experiences, I set out to create a way patients could share their experiences. In this 2019 edition, dataMSA collected information from more than 1000 persons worldwide who have been affected by MSA (patients, caregivers, loved ones to those lost). This text is an invaluable resource for health care providers, support staff members and others who seek information about multiple system atrophy. Sections of the data were presented at the 2018 International Congress of Parkinson's Disease and Movement Disorders in Hong Kong. No revenue is collected from the surveys and patients remain confidential. 100% of the profits from this book will be donated to support research for a cure. Bill Sydnor, MSA patient/ dataMSA creator /<a target="_blank" rel="noopener nofollow" href="http://www.dataMSA.com">www.dataMSA.com</a>

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dataMSA Surveys for Multiple System Atrophy, Bill Sydnor

Langue
Année de publication
2015
Reliure
(souple)
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Titre
dataMSA Surveys for Multiple System Atrophy
Sous-titre
Patient Data Report
Langue
Anglais
Format
souple
Pages
223
ISBN10
1519729103
ISBN13
9781519729101
Séries
Mots clés
Médecine
Description
(2019 Edition) When I couldn't find patient-driven information about MSA, and when my doctors didn't have a lot of information about patient experiences, I set out to create a way patients could share their experiences. In this 2019 edition, dataMSA collected information from more than 1000 persons worldwide who have been affected by MSA (patients, caregivers, loved ones to those lost). This text is an invaluable resource for health care providers, support staff members and others who seek information about multiple system atrophy. Sections of the data were presented at the 2018 International Congress of Parkinson's Disease and Movement Disorders in Hong Kong. No revenue is collected from the surveys and patients remain confidential. 100% of the profits from this book will be donated to support research for a cure. Bill Sydnor, MSA patient/ dataMSA creator /<a target="_blank" rel="noopener nofollow" href="http://www.dataMSA.com">www.dataMSA.com</a>